Wednesday, May 6, 2009

Chronic Transformed Miraine

I spoke with my neurologist on the phone today; this is how I do my appointments with him.

I have headaches all the time and have a hard time distinguishing the difference between tension headaches and migraines. One to two days a month I know I'm having a migraine and then the rest of the month I have headaches every day.

He told me I am having chronic transformed migraines and that I am to treat every headache I have as a migraine. Well...that takes the guess work out of it for me! I haven't been treating my headaches with any type of drug, except for maybe once or twice a week, and only using Alieve for those at that. Now I am to use my Migranal Spray, and if I still have the headaches after a few days I'll be using the prednisone taper.

On the other side of things, I'm increasing and adding back my preventative drugs/supplements.

Co-Q10 is back. I stopped taking it a few months ago because I didn't think it was doing anything. He told me that I'm not to stop the drugs he has me on but that if it isn't working, I may not be getting the level I need--so more drugs, not stop drugs.

Also, I asked about stopping the B-2: No; staying on them.

Butterbur is increased to 75mg, twice a day. I thought for sure that he told me in the beginning once a day; either way, I'll be increasing that.

Then I'll wait a month...

He said the "spot" headaches are probably referred pain from the occipital nerve being pinched. Back to that neck tension... My neck is a little tight, but not in pain like it used to be. I'll have to watch that and see if I notice a correlation between neck tightness and those "spot" headaches.

Let the pill swallowing, nasal spraying, steroid popping increase. Ugh.